+ Post New Thread
Page 1 of 2 12 LastLast
Results 1 to 15 of 17
General Chat Thread, Have you heard about care.data? in General; ...
  1. #1

    Join Date
    Apr 2007
    Location
    Cornwall
    Posts
    285
    Thank Post
    18
    Thanked 79 Times in 51 Posts
    Rep Power
    37

    Have you heard about care.data?

    An article in PC Pro magazine brought this to my attention. Details are in the link below, created by a GP. As I read it, all of our medical data is just about to be harvested up by an organisation (HSCIC) purely so this data can be sold to other organisations. This data will be transferred from GP practices and hospitals and will be updated monthly.

    They say that the data is anonymised, but not that much by the looks of it Ė much can be tracked back to individuals without too much bother. This data could quite easily be obtained by insurance companies, mortgage providers, etc with quite worrying consequences and thatís probably just the tip of the iceberg.

    Please do make your own minds up. For lots more info, visit: care.data - the brief version

    You can opt out, but it needs to be done quite quickly. The process is due to start in Autumn and once data has been sent to HSCIC, you cannot ask them to remove it, just can just opt out of the monthly update process. I know Iím going to opt-opt out ASAP and write to my MP too.

    Meldrew

  2. 6 Thanks to Meldrew:

    AMLightfoot (19th August 2014), CAM (19th August 2014), HarryMonkey (20th August 2014), LosOjos (20th August 2014), plexer (19th August 2014), visioN (19th August 2014)

  3. #2

    Domino's Avatar
    Join Date
    Oct 2006
    Location
    Bromley
    Posts
    4,094
    Thank Post
    217
    Thanked 1,292 Times in 802 Posts
    Blog Entries
    4
    Rep Power
    513
    If they hadn't opened it up to third party organisations this could have been fantastic for medical researchers....le sigh

  4. #3
    CAM
    CAM is offline

    CAM's Avatar
    Join Date
    Mar 2008
    Location
    Burgh Heath, Surrey
    Posts
    4,192
    Thank Post
    841
    Thanked 374 Times in 290 Posts
    Blog Entries
    60
    Rep Power
    284
    Cheers, printed mine and dropping it off later today.

  5. #4

    Join Date
    Oct 2008
    Location
    Lincolnshire
    Posts
    2,230
    Thank Post
    13
    Thanked 230 Times in 219 Posts
    Rep Power
    68
    I would recommend you think twice about this, it could affect your care if you was admitted to hospital in an emergency situation and you were unable to provide any history of illness or medication you were on.

    Information is anonomised and the your name and address doesn't go with it, its all on your NHS number, also worth checking out the SCR website.

    If you want to still opt out I suggest you speak to your practice manager at your local practice or if you are still unhappy speak to your local CCG.

    Those of you who don't see a GP very often will have a very empty record and will benefit those with complex and ongoing issues.

  6. #5

    Join Date
    Dec 2005
    Posts
    536
    Thank Post
    34
    Thanked 89 Times in 79 Posts
    Rep Power
    39
    If you read the care.data - the brief version website it mentions this -

    Medical staff treating you in GP surgeries, hospitals, A&E, pharmacies, NHS 111 call centres and GP out-of-hours centres will not use, or be able to use, this database.
    Now if that is correct then opting out will not affect your normal treatment

    I'm going to opt-out mainly because I just don't like the way they do these things - make it opt-in would be fine.
    Last edited by siuko; 19th August 2014 at 12:41 PM.

  7. #6

    Join Date
    Apr 2007
    Location
    Cornwall
    Posts
    285
    Thank Post
    18
    Thanked 79 Times in 51 Posts
    Rep Power
    37
    Yep, this is nothing to do with general day to day data sharing between hospitals, GPs, etc. The opt-out form for example states that this will not affect your medical care in any way.

    Quote from the form:
    "This programme is called care.data, and the information uploaded will be used for purposes other than your direct medical care (so-called “secondary uses”).
    Medical staff treating you in GP surgeries, hospitals, A&E and out-of-hours centres will not use, or be able to use, this database. However, the uploaded data is likely to be made available to organisations outside of the NHS, such as universities and commercial organisations."

    Also:

    ""This is not the Summary Care Record. The two databases are very different. Opting out of one database does not mean that you have automatically opted out of the other."
    Last edited by Meldrew; 19th August 2014 at 01:19 PM.

  8. #7
    d0pefish's Avatar
    Join Date
    Jul 2012
    Posts
    341
    Thank Post
    0
    Thanked 116 Times in 37 Posts
    Rep Power
    67
    The cynic in me thinks it doesn't really matter if you opt-out. It'll still happen, you'll just find out about it from another wikileaks reveal or something.

  9. #8


    AMLightfoot's Avatar
    Join Date
    Feb 2011
    Location
    Hampshire, England
    Posts
    2,201
    Thank Post
    373
    Thanked 642 Times in 405 Posts
    Rep Power
    269
    Quote Originally Posted by Meldrew View Post
    An article in PC Pro magazine brought this to my attention. Details are in the link below, created by a GP. As I read it, all of our medical data is just about to be harvested up by an organisation (HSCIC) purely so this data can be sold to other organisations. This data will be transferred from GP practices and hospitals and will be updated monthly.

    They say that the data is anonymised, but not that much by the looks of it – much can be tracked back to individuals without too much bother. This data could quite easily be obtained by insurance companies, mortgage providers, etc with quite worrying consequences and that’s probably just the tip of the iceberg.

    Please do make your own minds up. For lots more info, visit: care.data - the brief version

    You can opt out, but it needs to be done quite quickly. The process is due to start in Autumn and once data has been sent to HSCIC, you cannot ask them to remove it, just can just opt out of the monthly update process. I know I’m going to opt-opt out ASAP and write to my MP too.

    Meldrew
    I knew about the Summary Care record but not this! I'm appalled. Thanks for the heads up.

  10. #9
    CAM
    CAM is offline

    CAM's Avatar
    Join Date
    Mar 2008
    Location
    Burgh Heath, Surrey
    Posts
    4,192
    Thank Post
    841
    Thanked 374 Times in 290 Posts
    Blog Entries
    60
    Rep Power
    284
    Phoned my GP yesterday and got the whole family opted out. They didn't know it by the care.data name but did recognised HSCIC.

  11. #10
    rich_tech's Avatar
    Join Date
    Mar 2011
    Location
    Wales
    Posts
    1,082
    Thank Post
    130
    Thanked 139 Times in 121 Posts
    Rep Power
    65
    Anyone got a reliable link to how it is regards Wales, I know it mentions England alone? I cannot see anything mentioned on there and google seems to be keeping in the dark about it.

  12. #11

    sonofsanta's Avatar
    Join Date
    Dec 2009
    Location
    Lincolnshire, UK
    Posts
    5,004
    Thank Post
    876
    Thanked 1,458 Times in 1,002 Posts
    Blog Entries
    47
    Rep Power
    644
    Why can you never have it removed? Doesn't that breach DPA, or have they written a specific exception for these clowns?

    Will opt the family out now though, cheers for the heads up.

  13. #12

    Join Date
    Apr 2007
    Location
    Cornwall
    Posts
    285
    Thank Post
    18
    Thanked 79 Times in 51 Posts
    Rep Power
    37
    Quote Originally Posted by sonofsanta View Post
    Why can you never have it removed? Doesn't that breach DPA, or have they written a specific exception for these clowns?

    Will opt the family out now though, cheers for the heads up.
    Reading the info, it seems the data has been classified as not applicable to DPA as its has been anonymsed, except its not been done very well so can be linked back to individuals. Sounds thoroughly dodgy to me.

    Meldrew

  14. #13

    JJonas's Avatar
    Join Date
    Jan 2008
    Location
    North Walsham, Norfolk
    Posts
    3,117
    Thank Post
    389
    Thanked 439 Times in 327 Posts
    Rep Power
    385
    Quote Originally Posted by CAM View Post
    Phoned my GP yesterday and got the whole family opted out. They didn't know it by the care.data name but did recognised HSCIC.
    I think this is something you have to do in person as they need to verify that it is you asking to be opted out.

  15. #14


    Join Date
    Feb 2007
    Location
    51.403651, -0.515458
    Posts
    9,069
    Thank Post
    232
    Thanked 2,719 Times in 2,007 Posts
    Rep Power
    797
    Quote Originally Posted by Meldrew View Post
    You can opt out, but it needs to be done quite quickly.
    If you opted-out earlier this year, do you need to do it again?

    I opted out after reading this thread...

    www.edugeek.net/forums/general-chat/130959-your-medical-secrets.html
    Last edited by Arthur; 20th August 2014 at 01:02 PM.

  16. #15

    Join Date
    Sep 2013
    Posts
    56
    Thank Post
    8
    Thanked 9 Times in 7 Posts
    Rep Power
    4
    Whole family opted-out over the phone! Done.

SHARE:
+ Post New Thread
Page 1 of 2 12 LastLast

Similar Threads

  1. Have you heard of AltoDigital
    By thom in forum Recommended Suppliers
    Replies: 7
    Last Post: 13th April 2011, 09:44 PM
  2. [Video] Have you heard - the bird is the word.
    By mattx in forum Jokes/Interweb Things
    Replies: 0
    Last Post: 5th December 2010, 10:03 AM
  3. Have you built your own wireless network? Care to share?
    By m0nty in forum Wireless Networks
    Replies: 12
    Last Post: 24th November 2009, 12:04 PM
  4. Have you thought about IPv6 implementation?
    By SYNACK in forum Wireless Networks
    Replies: 26
    Last Post: 9th November 2008, 11:28 AM
  5. Have you heard?
    By RabbieBurns in forum General Chat
    Replies: 7
    Last Post: 13th October 2008, 03:39 PM

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •